In June of 1986, five organizations (Alopecia Areata Foundation, Dystrophic Epidermolysis Bullosa Association, the National Foundation for Ectodermal Dysplasias, Foundation for Ichthyosis and Related Skin Types and National Psoriasis Foundation) formed specifically to present its opinions on issues relating to the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS). In January of 2008, the Coalition officially incorporated as a 501 (c)(3).
To advocate on behalf of the individuals with skin disease. This is accomplished by:
- supporting basic scientific and clinical research
- fostering physician and patient education
- generating awareness of the skin disease
- supporting the growth of member organizations through the sharing of mutual concerns, which may increase the pace of discovery or a cure, while improving the quality of life for those affected
The CSD works closely with NIAMS to coordinate research efforts for all skin diseases. Members of the Coalition meet annually with members of Congress and testify when selected before the appropriations committees to educate Congress and the public on the seriousness of skin diseases while stressing the need for increased medical funding. The CSD also works closely with our affiliate members: American Academy of Dermatology, Dermatology Nurses Association, and the Society for Investigative Dermatology.
President: Kristi Schmitt Burr (BCCNS Life Support Network)
Vice President: Susan Thornton (Cutaneous Lymphoma Foundation)
Secretary: Taylor Scott (Nevus Outreach)
Treasurer: Jean Pickford (Foundation for Ichthyosis and Related Skin Types)