CSD Members & Affiliates


Members Executive Main Line Website
Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network Kristi Schmitt Burr, ED 440-834-0011 www.bccns.org
Cicatricial Alopecia Research Foundation (CARF) Victoria Ceh, ED 310-801-3450 www.carfintl.org
Cutaneous Lymphoma Foundation (CLF) Susan Thornton, CEO 248-644-9014 www.clfoundation.org
Foundation for Ichthyosis & Related Skin Types (FIRST) Jean Pickford, CEO 215-997-9400 www.firstskinfoundation.org
International Pemphigus & Pemphigoid Foundation (IPPF) Will Zrnchik, ED 916-922-1298 www.pemphigus.org
International Topical Steroid Addiction Network (ITSAN) JoAnne VanDyke, Pres 616-638-7069 www.itsan.org
Melanoma Education Initiative (MEI) Elizabeth Mancini, ED 330-322-7533 www.melanomaeducationinitiative.org
National Alopecia Areata Foundation (NAAF) Dory Kranz, Pres & CEO 415-472-3780 www.naaf.org/
National Eczema Association (NEA) Julie Block, Pres & CEO 415-499-3474 www.nationaleczema.org
National Foundation for Ectodermal Dysplasias (NFED) Mary Fete, ED 618-566-2020 www.nfed.org
National Psoriasis Foundation (NPF) Randy Beranek, Pres & CEO 503-244-7404 www.psoriasis.org
Nevus Outreach, Inc. Mark Beckwith, ED 918-331-0595 www.nevus.org
Pachyonychia Congenita (PC) Project

PRP Alliance

Mary Schwartz, ED

Will Sivilli, Pres





The Sturge-Weber Foundation (SWF) Karen Ball, Pres & CEO 973-895-4445 www.sturge-weber.org
Vitiligo Support International, Inc. (VSI)

Xeroderma Pigmentosum (XP) Family Support Group

Jackie Gardner, ED

Michele Milota, ED





American Academy of Dermatology (AAD) Mark Lebwohl, Pres 847-240-1029 www.aad.org
Dermatology Nurses’ Association (DNA) Linda Markham, ED 856-380-6823 www.dnanurse.org
Society for Investigative Dermatology (SID) Jim Rumsey, CEO 216-579-9300 www.sidnet.org