Cicatricial Alopecia Research Foundation

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www.carfintl.org | 310-801-3450

The Cicatricial Alopecia Research Foundation (CARF) is a non-profit charitable organization and the world’s only voice for patients with cicatricial alopecia.  The Foundation’s mission is to provide education and patient support, raise public awareness, and advance and promote reasearch. CARF’s vision is to improve the care of patients with inflammatory, scarring hair disorders.

WHAT IS CICATRICIAL ALOPECIA?

The term “cicatricial alopecia” refers to a diverse group of rare disorders that destroy the hair follicle, replace it with scar tissue, and cause permanent hair loss. In some cases, hair loss is gradual, without symptoms, and is unnoticed for long periods. In other cases, hair loss is associated with severe itching, burning and pain and is rapidly progressive. The inflammation that destroys the follicle is below the skin surface and there is usually no “scar” seen on the scalp. Affected areas of the scalp may show little signs of inflammation, or have redness, scaling, increased or decreased pigmentation, pustules, or draining sinuses. Cicatricial alopecia occurs in otherwise healthy men and women of all ages and is seen worldwide.

UPCOMING EVENTS

CARF’S 7TH INTERNATIONAL PATIENT-DOCTOR CONFERENCE

June 3-5, 2016

Hampton Inn & Suites New Orleans Convention Center Hotel
New Orleans, Louisiana, USA

Program Chair: Nicole E. Rogers, MD
Host: CARF New Orleans Support Group

Patients, families, friends, physicians, and nurses will:

  • Learn more about the diagnosis and available treatments
  • Discover the latest research breakthroughs for cicatricial alopecia
  • Hear about cosmetic solutions
  • Meet leading physicians and researchers in an informal setting
  • Participate in small group discussions, meet new friends and get support
  • Explore the culture and history of the New Orleans area

Our patient conferences have changed people’s lives, and we hope they can change yours as well.